Sometimes as a tubie, the spirit is willing but…that Sunday dinner looks amazing!
I get a little over confident sometimes and will try to eat something like a normal person. You know, in the mouth, chew and swallow. Easy enough, right? Not for a tubie! The doctors encourage me to eat soft food when/if I can handle it. 9.99% of the ten times, the result is the same. Face in the toilet bowl, followed by a gastric relief drain bag. I have 2 tubes. The G (gastric) tube is for draining anything I need to from my stomach. The J (jejunal) tube goes straight to my small intestine. That is how I “eat”. The formula goes straight to my intestines. Except for when I get ballsy (or just plain stupid) and eat food through my mouth like a normal person…eat, chew, swallow…ugh…vomit. It is kind of like borrowing food. Never really getting to hang on to it. I know it’s gross! Believe me, I gross myself out!
Since I feed into my intestines, my stomach is ALWAYS empty and ALWAYS hungry. It is not a fun feeling. You would think I’d look like a model but the formula is very calorie dense. Imagine that shit?! You don’t get to eat but you can actually gain weight from formula that you are never satisfied from and never taste. By the way, it’s vanilla flavor. Uh…why? I can’t taste it. Kelsey once tasted it and said it wasn’t bad. Brave girl! I just can’t do it. I don’t know about you, but if I am going to watch my butt grow, I would like to have the memory of a delicious steak dinner and/or a great, big hot fudge sundae with whipped cream, walnuts and a cherry…maybe 2 cherries…ah hell…3!
Oh…quick car update…STILL have a rental. I’m told Tuesday is THE day I should be able to wrap up all of this car drama. We’ll see, I’m still being told my car is perfectly fine. I told them if it so fine…they shouldn’t mind if I trade it in and they put it on their lot! Fingers crossed!
So as I sit and blog, I drain, and watch the Sixth Sense. Great movie!!! “I see dead people”. It gets me every time. But as for me, I look around the room at my family and think…I see FED people. Ugh! If only.
Hope you all had a great weekend!
Woohoo! My life is a blog!

Joey,
Your writing skills are so good I hope you’re keeping all of them so you can have them for your book. I mean that sincerely! It’s so informative but in such an entertaining way that your audience is learning about scleroderma without feeling like they’re being lectured to. That’s a real gift!
Love you, Uncle Vin
Sent from my iPhone
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Aww thanks Uncle Vin! I love you so much!
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Finally caught up on the blog I missed as well as your latest. The Norman Rockwell was a perfect touch. Leave it to you Joey. You are the Best and I love you more than words can say. So grateful for you
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Thank Mom! Remember that when Wednesday’s blog posts! K? Love you!
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Love this blog!
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Thanks Terri! You are the reason I started! You’re my inspiration! If you were here I would sing the Chicago song to you! Xoxo
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Your Jelly post had me cracking up!
When the fam & I are on group text with my sister-in-law Kelly, Siri on our iPhones autocorrects her name to Jelly so everyone calls her Jelly too! Lol
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Lol! Got to love Jelly!!
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You are an amazing person Joey!!!! Hope you get your car straightened out from those LOSERS today!!!!!!!!!!
You would have made a brilliant writer BTW! 🙂
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Thanks love!!!
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